Registered
Public benefits
The charity trustees believe that our purposes satisfy both elements of the public benefit requirement. The direct benefits which flow from purpose one include: (1) enhanced quality of life for children affected by congenital heart disease and (2) reduced anxiety/stress levels and improved emotional well-being for these children and their families.
The direct benefits which flow from purpose two include: (1) an improvement in the knowledge and treatment of congenital heart disease and (2) improved health outcomes and quality of life for children affected by congenital heart disease. The direct benefits which flow from purpose three include: (1) reduced levels of stress and anxiety for families who have suffered the unimaginable loss of a child; (2) improved mental health and emotional and physical well-being for bereaved parents and siblings and (3) improved ability of families to rebuild their lives and move forward in their grief. The benefits above will be demonstrated through feedback from beneficiaries, research clinicians and chosen recipient charities; and through regular evaluation of our services/donations as carried out by Trustees. There is no harm arising from purposes one and three. In relation to purpose two there is a potential risk of unintended side effects from medical research into congenital heart disease however, this is the nature of medical research, and the benefits outweigh the risks. The trustees rely on the expertise and professionalism of research clinicians to properly assess and manage any harm. The beneficiaries of the charity are: (1) children in Northern Ireland with congenital heart disease and their families and (2) families in Northern Ireland who have suffered the bereavement of a child. There are no private benefits flowing from purpose one and three of the charity. With respect to purpose two the only private benefit is an improvement in the professional development of clinical personnel who receive donations to support medical research into the cause, diagnosis, or treatment of congenital heart disease. This benefit is incidental and necessary in advancing the charity’s purpose.
... [more] [less]What your organisation does
This charity was set up in memory of Dylan Phillips who tragically passed away in December 2021, aged 13. Dylan was born with a complex congenital heart defect but always embraced life with positivity and courage, inspiring everyone he met to do the same. The Trust aims to continue his legacy by helping and supporting others affected by congenital
heart disease or child bereavement in his memory. The Trust aims to raises funds through donations and fundraising events. The funds will then be used to achieve the Trust’s purposes, in particular but not exclusively by: 1.Organising activities for bereaved families to promote well-being and aid the grieving process. 2.Providing emotional support and practical assistance/advice to families who have experienced bereavement of a child or whose child is affected by congenital heart disease. 3.Providing grants to families who have experienced the bereavement of a child so they can access support from other professionals and organisations to help the family rebuild their lives and deal with their loss. 4.Providing grants to families who have experienced bereavement of a child or whose child is affected by congenital heart disease to relieve financial hardship. 5.Supporting medical research into the cause, diagnosis, and treatment of congenital heart disease. 6.Supporting by donation any registered charitable organisation having similar purposes to those of the Trust.
... [more] [less]The charity’s classifications
- The advancement of health or the saving of lives
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Children (5-13 year olds)
- General public
- General public
- Parents
- Voluntary and community sector
- Youth (14-25 year olds)
How the charity works
- Advice/advocacy/information
- Community development
- General charitable purposes
- Grant making
- Research/evaluation