Overdue: 105 days
Public benefits
The direct benefits flowing from the organisations purpose are; Advocacy for haemophiliacs and von Willebrandt sufferers and their families, education on issues relating to bleeding disorders, support on health related issues, support for victims of the contaminated blood scandal. The benefits identified can be demonstrated as follows: we hold
family event days and education events and provide opportunities for the bleeding community to meet, be informed and be represented with a unified voice and representation. Publications for families with children sufferers disseminated to the bleeding community on life with haemophilia. Support to victims of contaminated blood through advocacy with our legal team acting for NI victims at the public inquiry. There is no harm arising from the purposes. The organisations beneficiaries are Haemophilia and Von Willebrandt sufferers and their families. There is no private benefit flowing from the purpose.
... [more] [less]What your organisation does
Haemophilia NI holds public events for its members. These take the form of family days, education events, social events which provide opportunities for advocacy and engagement and the dissemination of information through short publications.
The charity’s classifications
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Carers
- Children (5-13 year olds)
- Men
- Older people
- Parents
- Women
- Youth (14-25 year olds)
How the charity works
- Advice/advocacy/information
- Medical/health/sickness
