-
Status
Received: 16 days late
-
Income
£0.1K
-
Spending
£0.0K
Public benefits
TunMicro SCF promotes research which is contributing to the scientific and medical understanding of SCD/SCT and its causes. We also support the development of new treatments that may provide relief from the effects and symptoms of SCD, leading to better health outcomes for those diagnosed with SCD/SCT. TunMicro is also promoting the welfare of
those suffering from SCD/SCT, and these include improved quality of life, access to good health services and well-being outcomes for families, friends and carers who have been directly or indirectly affected with SCD/SCT. We recognise our unique talents in delivering Biomedical services on a day to day basis in Northern Ireland, and that's why we are advancing education about Sickle Cell Disease/Trait (SCD or SCT) to Africa particularly Nigeria, as well as offering Free Sickle Cell Screening. Our Team from the Pathology department of South Eastern Health and Social Care Trust, Ulster Hospital I Belfast commenced on preparatory charity mission in December 2015 to the Public Health Centre Oshodi Local Government Council in Lagos, Nigeria to offer free sickle cell screening and counselling. Nigerians need our medical professional talents because provision of providing free genetic screening particularly sickle cell gene, practical support and interventions in assisting sickle cell patients are lacking. The benefits to the public of a charity such as this is to ensure people of Nigeria who otherwise would die of a preventable sickle cell disease are given opportunity to have life to live. These benefits are demonstrated through the publication of results of research projects and about progress via the frequent feedback from our service users and other collaborators such as health professionals and the families and carers of people with sickle cell disease. We are unaware of any harm that may flow from these purposes. Other who may benefit include friends, family , and carers of those living with SCD/SCT in Northern Ireland and indeed those living outside of Northern Ireland (specifically in the rural Africa-focused project), who may also benefit from the outcome of research to which the charity may contribute. Most of our trustees who are participating in the activities of the organisation are also benefitting in that way because they access those services on equal terms with all other service users. We have given our trustees and staff training to ensure good governance and the efficient delivery of high-quality services that may be transferable to other areas of the their lives. We recruit volunteers to deliver our services. We do not currently have staff.
... [more] [less]What your organisation does
TunMicro Sickle Cell Foundation provides a varied programme of support and information services to individuals living with Sickle Cell Disease or Sickle Cell Traits, their families and carers. The unique focus of TunMicro SCF is that it is managed by health professionals with a keen interest/background specialising in the diagnosis of blood
diseases and also by people from the local BME communities all of whom are directly or indirectly affected by Sickle Cell Disease (SCD)/Sickle Cell Trait (SCT). Therefore, when people access our support, they will have the opportunity to meet and talk to others who are technically experienced or have been facing that same challenges. TunMicro is all about taking practical actions to deal with SCD/SCT as well as informing and educating beneficiaries about prevalence and management. Some of our programmes are geared towards breaking myths and taboos around SCD as well as tackling social isolation faced by those affected. TunMicro provides services which include, counselling, raising awareness, complementary therapies, advocacy/peer support. This can include hospital, home visits, and telephone support, health improvement sessions, bereavement support, carer's support, welfare, tailored support for families with babies affected by SCD, fatigue management, relaxation/stress management, signposting to other sources of support - health improvement training and workshops - outreach health improvement events e.g. talks, stalls, drama presentations - facilitating beneficiaries to share their experiences in order to improve future Sickle Cell Disease services in the regions of focus. We also support research and surveys into the prevalence, causes and treatment of SCD in the regions of focus.
... [more] [less]The charity’s classifications
- The advancement of education
- The advancement of health or the saving of lives
Who the charity helps
- Asylum seekers/refugees
- Ethnic minorities
- General public
- Overseas/developing countries
- Youth (14-25 year olds)
How the charity works
- Advice/advocacy/information
- Counselling/support
- Education/training
- Medical/health/sickness
- Research/evaluation
- Volunteer development
