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The Charity Commission for Northern Ireland
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Tourette Alliance

Documents 459 days overdue

Overdue: 459 days

Charity no. 105806 Date registered. 26/05/2017

Public benefits

The direct benefit which flows from the purposes is that there is a better understanding of the issues surrounding the Beneficiaries and their disorder. The Organisation can help to improve the lives of the Beneficiaries through access to the newest information available to treatments available and thereby maximising the benefit for the

Beneficiaries. Any information is then passed on to other relevant organisations such as schools and medical facilities etc. The advancement of education is for the public benefit by raising awareness in schools through information sharing, school presentations, providing in school services and per to peer counselling through our youth representative programme. This will give young people in our society a better understanding of the disorder as well as address social issues and stigma attached to the disorder. These benefits will be evidenced through the provision of access and information on the Beneficiaries disorder and treatments available. These benefits will be also be evidenced through the dissemination of significant discoveries to the Beneficiaries and through the promotion or initiation of studies, and also through access to the support groups within the Beneficiaries community. There is no harm flowing from these purposes. For the public benefit for the people of Northern Ireland with Tourette Syndrome or Tic disorders and their families The only private benefits are salaries paid to staff. These benefits are incidental and necessary to ensure the benefit is provided to our beneficiaries as the purposes could not be achieved without the input of these employees.

What your organisation does

Tourette Alliance will bring all beneficiaries together in a number of ways; first and foremost through the existing support group based in Belfast while continuing to establish new support groups throughout NI. The Tourette Alliance will provide training on educational programmes, peer to peer counselling and vary methods of support for all

volunteers including Educational Advocates, Youth representatives and Parents. this training will ensure that all beneficiaries are provided educations support via In0Service training to educators and school support staff, Youth Representative presentations and peer counselling for continues support both at home and at school with the goals of reducing bullying, building confidence, reducing anxiety and spreading awareness and acceptance of Tourette Syndrome, Tic Disorders and Associated Conditions. The Tourette Alliance will continue outreach within the education, health and social systems to promote further awareness and acceptance. Provide opportunities for health professionals, education professionals and families to come together through our Annual Conference to share knowledge and skills with one another and gain a deeper understanding of Tourette Syndrome, Tic Disorders and Associated conditions as a collective group. The Tourette Alliance will also continue to provide social groups for children, young people and adults with these disorders along with family activities, holiday schemes and camps with facilitated workshops, family activities and peer to peer mentoring and support to bring children, young people their siblings, friends and families together in an environment were they can be free to express themselves and feel confident doing so.

The charity’s classifications

  • The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage

Who the charity helps

  • Children (5-13 year olds)
  • Learning disabilities
  • Mental health
  • Parents
  • Physical disabilities
  • Sensory disabilities
  • Youth (14-25 year olds)

How the charity works

  • Advice/advocacy/information
  • Disability
  • Education/training
  • Medical/health/sickness

Charitable purposes

The objects of the Tourette Alliance shall be: To assist individuals with Tourette Syndrome, Tic Disorders and their families as a resource for information, support services, and access to early diagnosis and state-of-the-art information and medical treatment. To serve as an advocacy and educational organization, providing the most current medical information to schools, social services agencies and other national healthcare delivery systems

Governing document

Constitution

Other name


  • 7 Trustees
  • 0 Employees
  • 0 Volunteers

Contact details

Public address

  • Suzanne, 6 Donegore Gardens, Belfast, BT11 9NA

Trustee board

Trustee
Miss Suzanne Margaret Lavery
Mrs Tanya Marie Sockol
Mrs Christine Mckeown
Mrs Traci Whiteley
Mr Damian Friel
Miss Susan Conners
Mrs Deborah Anderson

List of regions

  • In Northern Ireland