The direct benefits that flow from purpose (i) are enabling those who have Fibromyalgia to better manage their condition themselves and support each other in the management of the illness. This promotes well-being in those affected and allows them to live a fuller life while managing their condition. These benefits can be evidenced through direct
feedback from sufferers, their carers and medical professionals who refer patients to the charity. This will be gathered through the use of intermittent questionnaires and informal methods of feedback via the Helpline, email and Social Media. In providing support the charity sometimes connects people together on the basis of shared support. In doing so there is a minor risk that personal conflicts may arise. These are rare, and the benefit the support that our members give to one another on a practical and emotional basis far outweighs any possible harm. There is no private benefit flowing from this purpose. The direct benefits that flow from purpose (ii) are primarily enabling those who have fibromyalgia to better understand the nature of their condition and its likely impact. Additionally families and carers come to a better understanding of the condition also thus enabling them to provide more support. The support offered helps sufferers to look at the various options for managing their condition on a day to day basis. These benefits are evidenced by the volume and nature of printed material requested by sufferers when they make contact, alongside the use of feedback and social media requests. One possible area of harm from this facility is where misunderstandings can arise over the nature of the condition and its treatment/s. This is offset by ensuring that, where possible, volunteers are sufferers of Fibromyalgia themselves and have been living with the condition for some time thereby increasing levels of empathy and knowledge of the condition. We also ensure that medical professionals oversee all medical documentation. There is no private benefit flowing from this purpose. The direct benefits that flow from purpose (iii) are helping sufferers to gain better acceptance of their condition and ease the family burden of support. The charity also lobbies the local community to promote acceptance and awareness of Fibromyalgia for sufferers. There is no perceived harm in this purpose. These benefits can be evidenced through direct feedback from sufferers, their carers and medical professionals who refer patients to the charity. This will be gathered through the use of intermittent questionnaires and informal methods of feedback via the Helpline, email and Social Media. There is no private benefit flowing from this purpose. The direct benefits that flow from purpose (iv) are educating and assisting the medical profession to the extent that they are better able to provide a signposting service to the charity for those diagnosed with the illness, thereby ensuring that sufferers have a continuing avenue of support following diagnosis. These benefits can be evidenced through direct feedback from medical professionals by email, telephone, or Questionnaires. No specific harm is perceived to derive from this purpose. There is no private benefit attached to any of these purposes....
What your organisation does
FMSNI provides information and support on issues relating to fibromyalgia by way of our Helpline which operates Mon-Fri 10.30-4.00 (except for holiday periods which will be announced online). Tel 08448 269024 (National rates apply). Additional support is available online through our website (www.fmsni.org.uk) and also on Facebook
(https://www.facebook.com/FMSNI/). Our office at the Vine Centre, 193 Crumlin Road, BT14 7DX is available by appt on Tues mornings for anyone wishing to drop in and obtain direct assistance. We also provide membership at £13 p.a. (other rates available - full details on the website) which provides a Quarterly Newsletter and info on upcoming meetings. FMSNI tries to hold a medical based conference every 2-3 years where possible to obtain updated information on research....
The charity’s classifications
- The advancement of education
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- General public
- Physical disabilities
How the charity works