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Status
Received: 7 days late
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Income
£150.4K
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Spending
£185.7K
Public benefits
The benefit of purpose 1 (relief of sickness…) is achieved through the provision of trained support staff and a team of counsellors as well as a range of communication services. The direct benefits which flow from this purpose are improved health and wellbeing among sufferers of HD and their family members and reduced social isolation. Evidence of
the benefit can be established through staff supervision, secure client records, social media activity and client feedback. The Trustees have assessed that harm could result from the provision of incorrect information or poor service delivery to beneficiaries. This risk of harm has been deemed to outweigh the benefits and is mitigated through staff and volunteer AccessNI vetting, training and supervision as well as clear safeguarding policies and procedures. The Association has full insurance cover. There are also a number of channels where clients and family members can make a direct complaint or submit feedback. The beneficiaries are sufferers of Huntingtons disease and associated conditions and their carers and family members in Northern Ireland. The direct benefits which flow from purpose 2 (to foster an atmosphere of mutual support…) are improved wellbeing among sufferers of HD and their family members and reduced social isolation as well as increased emotional resilience. Evidence of the benefit can be established through staff supervision, secure client records and client feedback. The Trustees have assessed that harm could result from the provision of incorrect information or poor service delivery to beneficiaries. This risk of harm has been deemed to outweigh the benefits and is mitigated through staff and volunteer AccessNI vetting, training and supervision as well as clear safeguarding policies and procedures. There are also a number of channels where clients and family members can make a direct complaint or submit feedback. The Association has full insurance cover. In the case of counsellors the potential harm is managed by ensuring that counsellors have their own insurance and supervisors and abide by a professional code of conduct. The beneficiaries are sufferers of Huntingtons disease and associated conditions and their carers and family members in Northern Ireland. The benefits derived from purpose 3 (to raise awareness….) include improved health outcomes for patients as a result of increased knowledge and understanding of HD among health and social care professionals. Improved patient outcomes lead to a reduction on the level of stress and anxiety on carers and family members. An increase in public awareness and understanding of the condition leads to the benefit of reduced social stigma for sufferers and subsequently an improvement in the quality of life for patients, carers and family members. Evidence of the benefit can be established through statistical information, staff supervision, secure client records, training feedback and client feedback. The Trustees have assessed that harm could result from the provision of incorrect information or poor service delivery to the public or health and social care professionals. This risk of harm has been deemed to outweigh the benefits and is mitigated through ensuring the quality and accuracy of training and campaign information via a peer review group. In addition staff and volunteers are subject to AccessNI vetting, training and supervision as well as clear safeguarding policies and procedures. There are also a number of channels where health professionals, clients and family members can make a direct complaint or submit feedback. The Association has full insurance cover. The beneficiaries are sufferers of Huntingtons disease and associated conditions and their carers and family members in Northern Ireland. Health and social care and associated professional staff also benefit via professional development.
... [more] [less]What your organisation does
HDANI provides family support workers to provide emotional and practical support to people living with HD, carers and family members in Northern Ireland. We also have a youth service that provides one to one advice, support and information to children and young adults as well as providing group events throughout the year. We hold regional support
groups, deliver localised befriending and social engagement opportunities, counselling support, an event-based youth service, newsletter and ezine, host a website, twitter and facebook page, host an annual conference and provide information and training to professionals working in the area of HD.
... [more] [less]The charity’s classifications
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Carers
- Children (5-13 year olds)
- Mental health
- Older people
- Physical disabilities
- Preschool (0-5 year olds)
- Youth (14-25 year olds)
How the charity works
- Advice/advocacy/information
- Counselling/support
- Disability
- Education/training
- Human rights/equality
- Medical/health/sickness
- Research/evaluation
- Youth development
