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The Charity Commission for Northern Ireland
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Northern Ireland Kidney Patients Association

  • Status

    Received: on time

  • Income

    £26.0K

  • Spending

    £28.4K

Charity no. 104608 Date registered. 03/03/2016

Public benefits

The direct benefits which flow from our purpose are:- • Provision of information relating to health matters to both our members and the public. • Financial support and grants provided to renal patients in need of such support. • Organisation and funding of social events and outings for kidney patients and their families/carers. • Representation of

kidney patient issues at NHS and European health forums. • Encouragement of general public to join the organ donor register. The Intended beneficiaries are:- • Kidney patients • Kidney patients’ families and carers • Renal healthcare staff • General public • Families of deceased donors • Living donors and their families • All those in need of an organ transplant Harm or potential harm:- • There is no harm or potential harm as a result of our purposes being carried out. Private Benefit:- • While the vast proportion of our benefit is public, a small amount of hardship funds are provided to individual renal patients and families in difficult circumstances. These funds are only provided when we are contacted either by social workers or senior renal medical staff. Decisions to provide such funds are always by committee consent. These benefits are evidenced by:- • Our growing membership of over 400. • Our regular newsletter which describes our activities throughout the year • Our internet/online presence nikpa.org • Our attendance at government and NHS committees. • Our financial records and minutes showing donations to needy patients and NI renal dialysis centres. • Our contribution of purchase of equipment for the Renal transplant ward at Belfast City Hospital. • Our frequent involvement in organ denotation promotion events.

What your organisation does

a) The Association issues a Newsletter several times throughout the year covering topical subjects and forthcoming NIKPA events b) Attends information presentations, where invited specialist speakers address topics around issues of concern to members c) Provide a consultancy service which addresses everyday concerns of members. This may

entail raising issues with hospital management and Trust personnel d) Representation at Trust level on matters relating to renal policy developments, with particular reference to quality service delivery and the maintenance of the highest standards of same. e) Access to programmes of entertainment for dialysis patients f) Maintaining a link with similar associations in the rest of the UK, and in other countries g) Seeking NIKPA representation on relevant DHSS and Trust bodies h) Yearly receipt of NIKPA’s financial position, if requested i) Eligibility to vote in the election of NIKPA office bearers on a yearly basis j) Access to a central information bank/library on renal and associated matters

The charity’s classifications

  • The advancement of health or the saving of lives
  • The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage

Who the charity helps

  • Carers
  • Children (5-13 year olds)
  • General public
  • Men
  • Women
  • Youth (14-25 year olds)

How the charity works

  • Advice/advocacy/information
  • Disability
  • Medical/health/sickness
  • Welfare/benevolent

Charity accounts & reports for financial year end 31 December 2023

Independent examiners report Charity accounts Trustee annual report

Charity accounts & reports for financial year end 31 December 2022

Independent examiners report Charity accounts Trustee annual report

Charity accounts & reports for financial year end 31 December 2021

Independent examiners report Charity accounts Trustee annual report

Charitable purposes

1) To promote as much as we can within our power the interests of all renal patients in Northern Ireland 2) To support and/or organise social events and activities for renal patients and their families and carers 3) To provide access to information on renal diseases, and associated medical matters to renal patients, their families and carers 4) To promote the needs of renal patients with the appropriate authorities with a view to :- (1) improving the service delivery and ensuring quality provision in dialysis units, and associated wards/clinics etc… and (2) ensuring that the range of renal facilities across the province meets the regional needs of renal patients 5) Encourage scientific research into renal diseases and their treatment by all reasonable means, including the raising of, and/or the contributing of funds for research purposes 6) To improve support systems and clinical medical standards for renal patients and their families and carers 7) Raise public awareness of renal issues in Northern Ireland and promote the Organ Donor Register scheme

Governing document

Constitution

Other name

  • 4 Trustees
  • 0 Employees
  • 10 Volunteers

Contact details

Public address

  • Mr Nathan Fairbairn, 12 Cahir Linn, Rostrevor, Newry, County Down, BT34 3GP

Trustee board

Trustee
Mr Nathan Fairbairn
Mrs Patricia Gilbert
Mrs Jean Michelo
Mrs Emma Proctor

List of regions

  • In Northern Ireland