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Status
Received: on time
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Income
£1.0K
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Spending
£3.9K
Public benefits
The trustees believe that our purposes satisfy both elements of the public benefit requirement. The direct benefits which flow from purpose one include improving awareness and knowledge of sudden adult death syndrome (SADS) across Northern Ireland so that measures may be put in place to prevent risk of death. Furthermore, we will work closely with
the general public to ensure public venues in Northern Ireland are suitably equipped to deal with medical emergencies. These benefits are evidenced through feedback from the general public and regular co-operation with local schools and sports venues to ensure they are fully equipped for dealing with unexpected cardiac arrest. In addition, these benefits are evidenced through increased numbers of defibrillators throughout Northern Ireland and interactions with health professionals who advise on which medical devices are required. We will also be in regular contact with research professionals who can advise on the best contribution we can make to cardiac research in Northern Ireland. We believe there is no risk involved with raising awareness of SADS and it can only be of benefit to increase public knowledge of a condition that can affect anyone at any time. There may be side-effects associated with the use of defibrillators; however, without them the chance of death would be a lot higher. We therefore feel that the benefits of these devices outweigh the risks. We also believe there is no risk involved with contributing to research as it will only push us further towards an era of new therapeutic options to prevent risk of death. The beneficiaries of this purpose are people living in Northern Ireland. There is no private benefit flowing from this purpose. The direct benefits which flow from purpose two include increasing morale for young people in Northern Ireland affected by life-limiting heart conditions. Many of these children spend a large proportion of their childhood in hospital and this purpose allows us to provide them with an experience of a lifetime. These benefits are evidenced through interactions with parents of affected children to ensure the experience is individually suited to provide a memorable experience. There may be risk associated with long distance travel in some of these children; however we will always take the advice of medical professionals before committing. We therefore feel the benefits associated with this purpose outweigh any possible risk. The beneficiaries of this purpose are young people living in Northern Ireland affected by heart conditions. There is no private benefit flowing from this purpose.
... [more] [less]What your organisation does
We increase awareness of sudden adult death syndrome (SADS) through use of media outlets such as facebook, twitter and our website. We also distribute leaflets which provide information about SADS to the general public in Northern Ireland. We are in constant contact with schools and sporting venues in Northern Ireland to ensure they are equipped
with defibrillators. We actively purchase these devices and provide to those in need. We are also in regular contact with local manufacturer's of these devices to ensure each device is suited to the age range associated with the venue. We get in contact with families in Northern Ireland who have a child affected by a life-limiting heart condition. Together, and with the advise of medical professionals to ensure we are within the boundaries of not causing any harm, we plan activities and trips for these children to have an experience of a lifetime.
... [more] [less]The charity’s classifications
- The advancement of health or the saving of lives
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Children (5-13 year olds)
- General public
- Older people
- Preschool (0-5 year olds)
- Youth (14-25 year olds)
How the charity works
- Education/training
- General charitable purposes
- Medical/health/sickness
