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Removed
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This charity was removed from the register on 21 Feb 2020
Public benefits
The charity’s beneficiaries are ; parents, children and young people with disabilities/serious long term health conditions/continuing care needs, and their siblings and wider families, across Northern Ireland. The direct benefits which flow from the five purposes of Parent Action include; Advancement of health: Direct benefits which flow from these
purposes include the relief of the impact of the child or young person’s disability/long term health condition on the child concerned, their siblings, parents and wider family, reducing the family social isolation, and build their personal and local, social resources and supports. This will contribute to the improvement of all family members resilience to challenges of life, adaptive abilities to support the developmental needs of the whole family, and the parents, children and young people and their siblings, increased self esteem and feelings of control of and meaning for their experiences. Direct benefits will flow to all the beneficiaries of this charity, through enabling the parents of children with disabilities and their child’s siblings, to develop each child’s individual capabilities, competencies, skills and understanding, in partnership with the children’s teachers and schools, through the development of the parents advocacy skills and abilities, using person centred facilitation practices and approaches with Parent Action. Advancement of community development: Promotion of the social inclusion and citizenship, of parents and children and young people in their local communities, homes and schools, because of more effective advocacy skills of the parents. This enables more effective engagement of the children in the family with social outlets, play and leisure opportunities and all the resources and supports which come from social inclusion locally. Advancement of human rights: Through the empowerment of children’s parent advocates, when there is a diagnosis of serious long term health condition/ disability in the family, parents can better and more effectively advocate for their child and family needs. This then ensures the promotion and enjoyment for all children with serious long term health conditions and disabilities, and their siblings, of their rights as children (UNCRC 1989; CAWT 2008), particularly the children and young people’s rights under the principles of the Convention such as; • The principle of non discrimination • The principle of the best interests of the child • The principle of respect for the child’s view and their right to participate • The principle of the child’s right to life, survival and development. The benefits will be demonstrated through parent feedback questionaires, developed in partnership with parent members and the Parent Action Board, on all Parent Action activities, are administered at six monthly intervals to all parent members. Results are analysed in partnership with Parent Action’s Board and disseminated to members and stakeholders in the annual report and via ‘Parent Voice’, Parent Action’s monthly e-bulletin. The benefits will also be demonstrated through publication and dissemination of the participatory research projects, being undertaken as part of the development of Parent Action’s independent advocacy service.No private benefit has been identified with the exception of purpose 3, where the only private benefit flowing from this purpose is to the educational institution accrediting and supporting the design of the Parent Facilitator Training Course. These private benefits are however, incidental and necessary because the academic institution’s input and support is necessary to produce a training course for parents, which will be of a high enough quality to achieve the above purpose of Parent Action, and confer on the parents participating, and subsequently their children and families, the above benefits.
... [more] [less]What your organisation does
Setting up a small number of local, parent support and discussion groups, with parents of children with disabilities/continuing care needs, as part of a twelve month, participatory research project, to work with parents values beliefs and priorities about their experiences, and how those experiences could be improved.Home visits by Parent Action
staff to gather views of members/beneficiaries in their own homes, if they cannot or would prefer not to attend parent discussion groups.Formal training in person centred facilitation, negotiation and advocacy skills for parents wishing to facilitate and run parent support groups and other Parent Action activities, through the Parent Action Parent Facilitator Training Programme. Support and mentorship in facilitation skills, for parents and health and social care professionals wishing to set up and run parent support groups. Parent Action provides ongoing support, using a Parent Carer Forum model, for all parent support groups, and their activities.Information, independent advocacy and advice for parents, and health, social care and educational professionals, on the human rights of children and young people with disabilities, and organisations and parents expectations and requirements of personal and public involvement of service users, in health and social care service design, delivery and improvement. Promoting and developing individual parents’ advocacy, autonomy and authenticity in decision making for their children and family, through;person centred facilitation sessions in parent support groups, access to Cognitive Behavioural Therapy support through Parent Action, Accredited parent training in person centred facilitation and advocacy skills, in order that parents can eventually offer quality advocacy and facilitation services to other parents, as well as improve individual parents personal development and employability.Involve Me! participatory project to design a Family Participation Assessment Tool.
... [more] [less]The charity’s classifications
- The advancement of education
- The advancement of health or the saving of lives
- The advancement of citizenship or community development
- The advancement of human rights, conflict resolution or reconciliation or the promotion of religious or racial harmony or equality and diversity
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Adult training
- Carers
- Children (5-13 year olds)
- Learning disabilities
- Parents
- Physical disabilities
- Preschool (0-5 year olds)
- Sensory disabilities
- Voluntary and community sector
- Women
- Youth (14-25 year olds)
How the charity works
- Advice/advocacy/information
- Community development
- Disability
- Education/training
- Human rights/equality
- Medical/health/sickness
- Research/evaluation
Charitable purposes
The Charity's objects ("objects") are to promote the benefit of children and young people with continuing care needs and/or serious long term health conditions and disabilities and their parents and other family members or carers ("the beneficiaries") living in Northern Ireland by the provision of services and facilities for the relief of the impacts of disability and serious long term health conditions on the child/young person and family, the promotion of health and well-being and the advancement of education, and in particular to: a) foster an atmosphere of mutual support and encouragement among the beneficiaries and facilitate the setting up and development of parent support groups; b) provide good quality advice and information and a signposting service; c) devise, organise and /or deliver accredited and non-accredited training programmes for parents, other family members and carers, professionals working with children, young people with continuing care needs/ serious long term health conditions and disabilities; d) liaise, co-ordinate and work in partnership with statutory and voluntary agencies and community groups to promote person centred systems and cultures in public services provided to children and young people and their families; e) advocate on behalf of the beneficiaries and enable and empower parents to effectively advocate for the support their children need; f) to facilitate parent support groups to organise activities, events, outings and other opportunities for the beneficiaries to meet socially and enjoy life; g) carry out research and disseminate the findings and raise awareness among the general public of the needs and experiences of beneficiaries. 2. Provide good quality independent advocacy, advice and information and a signposting service for parents, children young people and interested organisations and people. 3. Devise, organise and deliver accredited and non-accredited training programmes for parents, carers, other family members, and professionals working with children/young people with disabilities, serious long term health conditions/continuing care needs. 4. Liaise, co ordinate and work in partnership with statutory and voluntary agencies and community groups, to advocate for the needs of the beneficiaries and promote person centred systems and cultures in public services to children, young people and their families. 5. Carry out research and disseminate the findings in such a way as to raise the awareness of the general public and stakeholders, of the experiences, rights and needs of the beneficiaries.