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Removed
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This charity was removed from the register on 9 Aug 2024
Public benefits
There are two main groups of beneficiaries: a) patients, who suffer from lymphoedema and b) their families and friends. 1. Patients, who have been informed and educated about lymphoedema, either by our information booklet (Lymphoedema - your questions answered), our website, telephone helpline, or by attending meetings of our organisation, have
been able to approach their doctors and request that they be referred for onward evaluation and treatment of their lymphoedema. Heretofore, many such patients were told that there was not a lot that could be done for their ‘swelling’. Many continue to inform us that they have not received Complex Decongestive Therapy (CDT). 2. Through our ongoing education programme for physiotherapists, we provide funding for them to attend the intensive MLD CDT Certification Course in lymphoedema management at the Földi Clinic in Germany. These physiotherapists are trained to provide the best evaluation and treatment for lymphoedema and many of our patients have benefited from this expertise. 3. Because lymphoedema has such a poor presence in the medical curriculum for doctors, we have made a special effort to inform GP’s and other health professionals of the up-to-date treatment of lymphoedema. Consequently, of the 10,000 copies of our booklet that we have issued to date, 1,200 copies were distributed covering all GP practices in Northern Ireland. Patients, who attend those GP’s, who are acquainted with the management of lymphoedema as outlined in our booklet, are more likely to be referred onward for the treatment they require for their condition. 4. By attending our meetings and interacting with other patient members, who suffer from lymphoedema, our patients get support, advice and friendship, which gives them confidence to carry on and cope with their condition. 5. The practical advice concerning MLD, skincare, bandaging, compression garments and self-treatment, which patients receive from lectures and demonstrations at our meetings is of invaluable help to them. 6. As a result of our advice and help, many of our patients have been able to attend the Földi Clinic in Germany for an intensive course of treatment for their lymhoedema with excellent results. This has been of enormous benefit both physically - their swelling having been greatly reduced and skin condition improved, and mentally - their morale having been boosted. There is no private benefit or potential harm.
... [more] [less]What your organisation does
Lymphoedema Support NI was established in 2002 to: 1. Provide support for people with lymphoedema 2. Provide information about lymphoedema and its treatment 3. Work towards the availability of better resources for lymphoedema treatment 4. Work in partnership with local healthcare professionals and others involved in the
statutory and voluntary sectors in furtherance of our goals What Lymphoedema Support NI offers: 1. Telephone helpline 028 9066 7570 2. Current information about lymphoedema and its treatment in Northern Ireland and overseas 3. Support Group meetings twice a year 4. Provide funding for healthcare professionals to attend educational courses in the management of lymphoedema at the Földi Clinic in Germany (www.foeldiklinik.de). Lymphoedema Support NI is committed to its ongoing development as an independent organisation for the support of lymphoedema patients across Northern Ireland, and we encourage everyone affected by lymphoedema to join Lymphoedema Support NI, where they will be made most welcome. For further information or a free copy of our patients' information booklet, 'Lymphoedema your questions answered', we can be contacted at: Lymphoedema Support NI PO Box 851 Belfast BT9 6WY Tel: 028 9066 7570 Email: info@lymphoedemasupportni.org W: www.lymphoedemasupportni.org Up-to-date information and useful contacts can be found on our website (www.lymphoedemasupportni.org)
... [more] [less]The charity’s classifications
- The advancement of education
- The advancement of health or the saving of lives
Who the charity helps
- General public
- Physical disabilities
How the charity works
- Advice/advocacy/information
- Counselling/support
- Education/training
Charitable purposes
The Association was established for the relief of sickness and to advance education about Lymphoedema from the point of view of people with Lymphoedema in N.Ireland, and in particular: (a) to foster an atmosphere of mutual support among people suffering from Lymphoedema and their carers / families and to encourage them to provide mutual support and encouragement to each other; (b) to raise awareness for the benefit of the public and the medical profession about the effects of Lymphoedema and the management of this illness.