-
Status
Received: on time
-
Income
£26.2K
-
Spending
£19.3K
Public benefits
The direct benefits from the purpose of Ellie's Retreat are the support of families who have suffered the unimaginable loss of a child. As a bereaved parent, one may experience excessive financial burdens as a result of extended absences from work etc. with the result that a much needed respite break may be financially inaccessible, however
through Ellie's Retreats, these parents can access respite breaks, were no charges are made for the accommodation. this can afford bereaved parents and siblings the space to reconnect away from daily pressures. Families can benefit from the anonymity of the mobile home in a tranquil setting. Funding of research into H-ABC Syndrome. As this is a little understood genetic condition, research is needed to identify potential treatments, which could result in sufferers being able to lead normal active lives. How can the benefits identified above be demonstrated? In terms of respite breaks, the benefits can be demonstrated from the feedback directly from those who avail of the services; increasing number of new families using the accommodation; return visit by families; successful fundraising on behalf of the charity. Research is being carried out jointly between the University of Pittsburgh & Children's Hospital of Philadelphia. Benefits can be demonstrated by progress in the research undertaken by these bodies. The purposes provide clear benefit to to the groupings identified, negating any potential harm. The charity's beneficiaries have been clearly defined as parents, siblings and carers, from Northern Ireland and the Republic of Ireland, who have suffered the loss of a child. Additionally those children who have been diagnosed with H-ABC Syndrome, will benefit indirectly from funding into research of this genetic condition. Any private benefit would be incidental, from the potential of the charity being supported by an individual who satisfies the criteria to benefit from the charity's purpose, ie being a bereaved parent, sibling or carer.
... [more] [less]What your organisation does
Under Article 4.1 the organisation carries out it's purpose by providing holiday accommodation within the surrounding of Castle Archedale Forest Park, Lisnarick, Co.Fermanagh where the organisation has purchased a static mobile home within the caravan park on the shores of Lough Erne, to be utilised exclusively for the provision of short respite
breaks for bereaved families of carers who have suffered the bereavement of a child. Under Article 4.2 funding will be made available for research into H-ABC Syndrome, a rare genetic disorder that claimed the life of Ellie Nicholl, in who's memory this organisation has been established.
... [more] [less]The charity’s classifications
- The advancement of health or the saving of lives
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Carers
- Children (5-13 year olds)
- Men
- Parents
- Women
- Youth (14-25 year olds)
How the charity works
- Accommodation/housing
- Counselling/support
- Medical/health/sickness
- Research/evaluation
