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Status
Received: on time
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Income
£69.2K
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Spending
£71.8K
Public benefits
The direct benefits which flow from our purpose include .. The medical team will be able to enhance the stay of the patients by providing comfort and educational help along with basic equipment for general care. Help will be provided to assist with the mental health of the patient in the form of whatever the individual requires within the
abilities of the group to help the beneficiary avoid suffering further from related mental health problems such as depression. Help will be provided for the families who are in need of support, to lessen the burdens of living with and caring for someone living with Congenital Heart Disease (CHD). The charity will be of benefit here due to NI having no such support for teenagers with these conditions and their families and will offer the relief to those affected. BraveheartsNi, will be run by the patients themselves, raising and distributing funds for equipment for the advancement of health and saving teenagers/young people’s lives as they are best placed to know these needs on an ever changing cycle. BraveheartsNi is a family of CHD teenagers and young adults providing what is needed, when it's needed for patients and their families, to minimize the stress of a horrendous time in their lives We will provide patients what they need when they need it to ensure that their daily journey living with this disease is supported and the burdens lessened. These benefits will be demonstrated through whatever the individual needs as they are best placed to determine their support requirements. For example – a befriending service, equipment, exercise/fitness support and financial aid. The benefits will remain fluid as time progresses and feedback/surveys identify new needs and benefits. There is no harm identifiable to the individual as all benefits will be overseen by an expert in the field of support required. The charity’s beneficiaries are those diagnosed with Congenital Heart Disease (CHD) and acquired heart disease, in particular from teenage patients onwards, the families of these patients and also any other carers requiring support and the Adult congenital Heart Disease team (ACHD) in the Royal Victoria Hospital and their satellite teams throughout NI. There are no foreseen private benefits. Any private benefits that occur as the charity evolves and grows will be purely incidental and will be monitored to ensure that it is in direct benefit to our beneficiaries.
... [more] [less]What your organisation does
A charity to provide for and support teenagers and young adults and their families in NI who have Congenital or acquired heart disease. Once a child with CHD turns 14 they are transitioned into the adult congenital cardiac service where they remain in limbo until they are 18. They are too young to be admitted into the adult hospital and therefore
must wait until a private room becomes available before they can receive treatment. BraveheartsNi, identifies and supports the needs of patients and their families living with congenital and acquired heart disease (CHD) in Northern Ireland. BraveheartsNi will support the patients and their families from their transition period of 14 years old when they move from the children’s cardiac service into the adult service (ACHD). We will provide patients what they need when they need it to ensure that their daily journey living with this disease is supported and the burdens lessened. As volunteers all monies raised will be used to provide for the CHD community and educate society as to their needs and reach out to others facing the disease on their own. We will endeavour to raise funds to provide research opportunities for the CHD team in NI. We will fundraise to provide a teenager ‘chillout’ area within the adult hospital where the can relax within an environment that is supportive of their young needs. A young teenager with CHD devised BraveheartsNi after spending many months trudging through this process in NI and meeting another young boy who was in the adult cardiac room for over 3 months and who came from a care home. He had no visitors, general bedtime/washing equipment and the room had no TV or any facilities a young boy would need. He went into a very deep depression and with the help of the Liaison nurse and the other teenager he started to thrive with the interaction of a befriending service and his personal needs and some spending money were provided for him
... [more] [less]The charity’s classifications
- The advancement of health or the saving of lives
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Adult training
- Carers
- Mental health
- Parents
- Physical disabilities
- Youth (14-25 year olds)
How the charity works
- Advice/advocacy/information
- Disability
- General charitable purposes
- Medical/health/sickness
- Relief of poverty
- Research/evaluation
- Youth development
