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Status
Received: on time
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Income
£18.5K
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Spending
£15.7K
Public benefits
The Purpose of Newry & Mourne ME Fibromyalgia Support Group is to offer relief, protection and promotion to people suffering from from Myalgic Encephalomyelitis (M.E.) and Fibromyalgia including their family members and carers. The Support Group also aims to offer information and guidance to raise awareness and advance education of these
conditions among the general public. The direct benefits which flow from these purposes include the improvement of health and well being of people suffering from M.E. and Fibromyalgia and the increased awareness and better education of the general public on the effects of these conditions. These benefits are evident through established collaboration with government departments i.e. NHS, Health and Social Care Board, Department of Social Services and Public Safety from where we collect information. These benefits will be evidenced through feedback from patients through UK wide charities and we have feedback directly from our members by taking part in a recent Action for M.E. survey. The group aims to demonstrate the benefits to our membership by collecting feedback through an annual member's survey. The purposes of our charity may lead to the possibility of members misunderstanding the information provided or changing their current treatments without first consulting their GP or medical provider. We can show that the possibility of this harm arising is outweighed by the benefits by clearly stating that we do not endorse or recommend any treatments or medications. The charities beneficiaries are individuals, their carers and families in the Newry and Mourne District who are suffering from M.E. or Fibromyalgia as well as the general public. The only private benefit flowing from this purpose is the programme of training in good governance and finance which is offered to our committee members. Through this training, committee members gain skills and experience which are transferable to other settings. Another private benefit is that committee members also avail of the services and information, provided by the charity to all members, as they also suffer from M.E. and or Fibromyalgia. These benefits are incidental and necessary to ensure the benefit is provided to our beneficiaries.
... [more] [less]What your organisation does
We hold twelve monthly meetings each year and provide specialist speakers to learn patients how to better manage their illness and to avoid further deterioration in health. Provide a referral service to other organisations who deal with specific problems which patients are also face with ie benefits, suicidal thoughts and help or advise with lack
of income. We organise a yearly medical professionals education conference, again we bring the top specialists in this area of medicine from around the world. Provide educational material to professionals on request. Fundraise for bio-medical research and forward these funds to charities who specialise in this area of research. Work with MLAs and the Dept of Health to lobby for adequate specialist NHS services for patients suffering from M.E. and Fibromyalgia.
... [more] [less]The charity’s classifications
- The advancement of education
- The advancement of health or the saving of lives
- The relief of those in need by reason of youth, age, ill-health, disability, financial hardship or other disadvantage
Who the charity helps
- Carers
- General public
- Mental health
- Physical disabilities
- Voluntary and community sector
How the charity works
- Advice/advocacy/information
- Disability
- Medical/health/sickness
- Research/evaluation
- Volunteer development
